The first visitor at the July 16 meeting was Mark Hulett, also known as Mark the Magician. He approached the board members for help in raising money for a Gordon youngster, Camden, who is suffering from cystinosis, which affects 400 in the U.S. and worldwide only 2,000 people. The newest treatment for the disease has a price tag of $365,000 a year.
Without his current treatment, Camden would have just weeks to live.
Because it is so rare, research funds are low. Camden’s father said he has set up a foundation to raise money for research, and the magic show is the next fund-raiser planned. The magic show will be held at the W.E. Knox Center next month.
County Attorney Frank Childs explained to the visitors that the county cannot legally waive the fee to rent the civic center, although the commissioners are supportive of the cause.
Hulett performed a magic trick borrowing a $20 bill from Childs, who then donated it to Camden.
“I had a feeling I wouldn’t see that $20 again,” he commented.
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